During the past five years, Australian Genomics worked with 12 rare disease and six cancer ‘flagships’, or cohort studies, to develop and tailor consent forms for a range of different genomic testing research. Building on these consent forms, Australian Genomics has developed a research consent template and genomic test fact sheet for use by other genomic research studies.
A draft Participant/Parent/Guardian Information and Consent Form (PICF/PGICF) template for research studies offering diagnostic genomic testing is available below (pending ethical review).
A genomic test factsheet and PICF/PGICF for research studies offering predictive genomic testing will be available soon.
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Nicole Den Elzen