Skip to content
  • About
    • What we do
    • Our history
    • Our team
    • Our committees
    • Our partners
    • About genomics
  • Services
    • What we offer
    • Research we’re supporting
  • Tools & resources
    • Search all tools & resources
    • Research ethics & governance
    • Consent & patient support materials
    • Evaluating genomic research & translation
    • Data governance
    • Access our datasets
    • Data capture & standardisation
    • Data analysis & interpretation
    • Workforce education
    • Our publications
    • Our submissions
  • Our project areas
    • Our project areas
    • Genomic information management
    • Clinical genomic practice
    • Genomic literacy, workforce & training
    • Indigenous genomic priorities
    • Genomic diagnostics
    • Evaluating genomic research & translation
    • Australian health system policy & practice
    • Involvement & engagement
  • News & events
    • News
    • Events
    • Personal stories
    • Search news & events
  • Connect with us
Laughing child leaning back on woman's knee

Research consent forms

Home Tools & resources Consent & patient support materials Research consent forms

During the past five years, Australian Genomics worked with 12 rare disease and six cancer ‘flagships’, or cohort studies, to develop and tailor consent forms for a range of different genomic testing research. Building on these consent forms, Australian Genomics has developed research consent templates for use by other genomic research studies, including:

  • A draft Participant/Parent/Guardian Information and Consent Form (PICF/PGICF) template for research studies offering diagnostic genomic testing (pending ethical review).
  • A draft Participant Information and Consent Form (PICF) template for research studies offering predictive genomic testing. This template includes the option for participants to consent to study participation but decline genomic testing (e.g. where a decliner survey is included in the study).

A genomic test fact sheet will be available soon. In the interim, you may wish to use the clinical genomic test fact sheet as a template, available here.

Resources

Template PICF/PGICF for research studies offering diagnostic genomic testing Template PICF for predictive genomic testing

Contact

Tessa Mattiske

tessa.mattiske@mcri.edu.au


More tools & resources

Reporting standards

Health economics

How we support data management & governance

Connect with us

(03) 9936 6345
info@australiangenomics.org.au
50 Flemington Road, Parkville
Victoria 3052 Australia

In the spirit of reconciliation Australian Genomics acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

To stay informed about our work, sign up to our newsletter

Subscribe

Quicklinks

  • Home
  • What we do
  • What we offer
  • Tools & resources
  • Our publications
  • Our project areas
  • Research we’re supporting
  • Our team

Privacy

  • We follow the Australian Privacy Principles
  • General privacy policy
  • Website privacy policies
  • Terms & conditions

Website by Blueboat.