The National Health and Medical Research Council consulted on a draft Supplementary Section to the Ethical guidelines on the use of assisted reproductive technology in clinical practice and research (ART Guidelines), which is designed to support the legislation in relation to the conduct of mitochondrial donation. The Australian Genomics submission highlighted areas where clarification of…
Australian Government is reviewing the NBS with the intention to expand the program to include more conditions and ensure consistency across Australia. Another objective is to review the time it takes to add new conditions to the screening test. In the submission, Australian Genomics communicated its support for the Genomics Health Futures Mission genomic newborn…
As part of its election commitment to establish a Centre for Disease Control (CDC), the Australian Government consulted on roles and functions of an Australian CDC. Australian Genomics participated in a consultation workshop and submitted a written consultation response. The submission encouraged government to carefully consider the CDC scope and immediate priorities, to establish partnerships…
Australian Government is developing a National Health Literacy Strategy as an immediate priority of the National Preventative Health Strategy. The objective is to develop an evidence based, person-centred strategy for improving health literacy. The Australian Genomics response highlighted projects aiming to improve genomic health literacy as examples and discussed the need for cross-sector partnerships in…
Every year, the Independent Hospital Pricing Authority consults on its Pricing Framework for the following year, which sets pricing and policy decisions underlying the Activity Based Funding system. Australian Genomics’ submission in 2022 again highlighted the need for clarification and/or code development for genetic counselling services, as well as seeking clarification about code development for…
As part of the development of its One Stop Shop for research ethics and governance, the Australian Commission on Safety and Quality in Health Care consulted on the minimum requirements for nationally consistent Site-Specific Assessment (SSA. Australian Genomics was represented at workshops where the proof-of-concept submission platform was demonstrates, as well as providing a written…
One proposed change to the Standard was the introduction of the term ‘additional’ to describe “any finding that has clinical significance that was identified by the test but is not related to the request for testing. These were previously referred to as secondary or incidental findings or unsolicited findings”. An Australian Genomics project is reviewing…
The Australian Research Data Commons (ARDC) sought feedback on their draft Institutional Underpinnings Framework. This document was co-developed with 25 Australian university partners. It aims to create a framework that informs institutions on the design of research data management within and between institutions. The initial phase focused on eight essential elements concentrating on the design…
The Australian Government Attorney General’s Department conducted a review of the Privacy Act 1988. The proposed changes included updates to the definition of personal information, as well as consent, secondary use purposes, research, and health-related exemptions. Consultation roundtable workshops were held, with Australian Genomics participating in one specifically focussed on health research and health-related exemptions….
Read our submission on the draft National Research Infrastructure Roadmap, which aims to provide a roadmap and vision for National Research Infrastructure investment for the next 5 to 10 years.
