Summary
The Blueprint for a National Approach to Genomic Information Management (NAGIM) is a digital genomics blueprint developed for the Federal Government. This is a national framework including best practice principles to guide an Australian strategy for managing genomic information.
Australian Genomics is developing recommendations for implementing NAGIM across the research and clinical sectors. We are undertaking pilot projects to develop and encourage adoption of standard approaches and tools supporting the collection, storage and use of genomic data in Australia, and progress responsible data sharing.
To understand genomic test results and make new genomic discoveries, researchers and clinical services rely on information generated by the combination of genomic data from many different people and produced at different organisations. For this to happen, data needs to be collected, processed and shared using common and standardised approaches.
Current projects
Research NAGIM
This project focuses on the management and use of genomic research data, advancing strategies for national approaches to data capture, use, and sharing across research infrastructures nationally.
This project contributes to national and international data infrastructure initiatives.
Clinical NAGIM
This project is developing strategies for a national approach to managing clinical genomic and healthcare data.
It aims to improve data sharing across jurisdictions for broader healthcare use and is conducting a feasibility pilot for establishing a national network of clinical genomic databases for diagnosis, in collaboration with pathology laboratories.
Pilot Laboratory Working Group
- Victorian Clinical Genetics Service
- Pathology Queensland
- NSW Health Pathology
- SA Pathology
Executive Briefing
- Clinical NAGIM Data Sharing Pilot – Executive Briefing (June 2024)
Recommendations and past reports
NAGIM Implementation recommendations 2023
Past reports
Clinical NAGIM reports
Project Coordinator
Dr Marie-Jo Brion