Digital technologies are increasingly being sought to manage the research consent process. CTRL is a secure web-based application that gives research participants the opportunity to engage more with a research program, update their personal details and choices about being involved in research, and take the lead in decision-making about secondary use of their genomic and health information.
CTRL also benefits research organisations. Electronic consent records replace paper and are more easily retrieved, it is interoperable with study databases like REDCap and manages permissions for secondary use of data using internationally endorsed standards.
Access a demonstration version of CTRL using the generic Study ID on the registration page: A1234123
See full instructions for access [this will link to where this sits on the new website].
Read the dynamic consent evidence summary [link to where this sits on the new website].
Read the European Journal of Human Genetics paper on how we designed and developed CTRL
Watch a video walkthrough below.
Contact
Matilda Haas