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Dynamic consent & CTRL (control)

Home Tools & resources Consent & patient support materials Dynamic consent & CTRL (control)

Digital technologies are increasingly being sought to manage the research consent process. CTRL is a secure web-based application that gives research participants the opportunity to engage more with a research program, update their personal details and choices about being involved in research, and take the lead in decision-making about secondary use of their genomic and health information.

CTRL also benefits research organisations. Electronic consent records replace paper and are more easily retrieved, it is interoperable with study databases like REDCap and manages permissions for secondary use of data using internationally endorsed standards.

CTRL has undergone recent upgrades and is now freely available to be adopted by the research community.

Adapt CTRL for your research program Access CTRL code here

 

Access a demonstration version of CTRL using the generic Study ID on the registration page: A1234123

See full instructions for access.

Read the dynamic consent evidence summary.

Read the European Journal of Human Genetics paper on how we designed and developed CTRL

Watch a video walkthrough below.

Assurance of digital assets

For CTRL to be successful, it must be trusted and accepted by participants in healthcare research, the public, and research organisations. To identify any risks that may impact that trust, CTRL was evaluated in the form of an assurance of digital assets (ADA) report. Australian Genomics partnered with DNV Group Research and Development (GRD), Healthcare programme to test the value of and refine the ADA framework using CTRL as a use case.

The overall aim was to further develop the ADA framework such that it supports the development of an assurance case for CTRL, by identifying and closing substantial trust gaps that may further support the successful implementation and scale of CTRL. The project findings are now available to download below with more information on the DNV website.

Download the DNV / CTRL report here

Contact

Matilda Haas

matilda.haas@mcri.edu.au


More tools & resources

Shariant

REDCap plugins

Research projects using our data

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info@australiangenomics.org.au
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Victoria 3052 Australia

In the spirit of reconciliation Australian Genomics acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

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