Prictor, M., Lewis, M.A., Newson, A.J., Haas, M., Baba, S., Kim, H., et al. (2019). Dynamic Consent: An Evaluation and Reporting Framework. J Empir Res Hum Res Ethics.
The ethics approval process for multisite research studies in Australia: changes sought by the Australian Genomics initiative
Haas, M.A., Boughtwood, T.F., & Quinn, M.C. (2019). The ethics approval process for multisite research studies in Australia: changes sought by the Australian Genomics initiative. Med J Aust, 211(10), 440-444.e441.
Nisselle, A., Martyn, M., Jordan, H., Kaunein, N., McEwen, A., Patel, C., et al. (2019). Ensuring Best Practice in Genomic Education and Evaluation: A Program Logic Approach. 10(1057).
A national clinical genomic consent process: Development of standardised consent materials for clinical genomic testing in Australia.
Prepared by Boughtwood T, Finlay K, on behalf of the National Clinical Genomic Consent Working Group, Australian Genomics. (December 2018).
Updated 20 October 2019.
Editor: Illing D, on behalf of Australian Genomics (2019). Authors: Furze A, Munro E, Reddy M, Stanton K. Design and Production: Mediaxpress
Australian Genomics Position Statement: Use of Genomic Information in Life Insurance and related policies.
Belcher A, Boughtwood T, Pearce M and Newson A, on behalf of Australian Genomics (2018). Updated July 2019.
Martin, A.R., Williams, E., Foulger, R.E., Leigh, S., Daugherty, L.C., Niblock, O., et al. (2019). Nat Genet.
Burns, B.L., Bilkey, G.A., Coles, E.P., Bowman, F.L., Beilby, J.P., Pachter, N.S., et al. (2019). Frontiers in Public Health.
The European research collaboration for Children’s Interstitial Lung Disease (ChILDEU) ERS Clinical Research Collaboration
Cunningham, S., Gilbert, C., & Schwerk, N. (2018). Eur Respir J, 52(6).