The Australian Research Data Commons (ARDC) sought feedback on their draft Institutional Underpinnings Framework. This document was co-developed with 25 Australian university partners. It aims to create a framework that informs institutions on the design of research data management within and between institutions. The initial phase focused on eight essential elements concentrating on the design…
The Australian Government Attorney General’s Department conducted a review of the Privacy Act 1988. The proposed changes included updates to the definition of personal information, as well as consent, secondary use purposes, research, and health-related exemptions. Consultation roundtable workshops were held, with Australian Genomics participating in one specifically focussed on health research and health-related exemptions….
Read our submission on the draft National Research Infrastructure Roadmap, which aims to provide a roadmap and vision for National Research Infrastructure investment for the next 5 to 10 years.
Our submission to the NHMRC and Australian Department of Health.
The National Healthcare Interoperability Plan is being developed by the Australian Digital Health Agency to map a pathway to a more connected Australian health system and to support the implementation of digitally enabled models of care. Read our submission.
The Medical Services Advisory Committee (MSAC) regularly seeks targeted feedback from Australian Genomics on genetic and genomic-related applications for public funding of medical services and technologies. Australian Genomics develops feedback for submissions by consulting with expert members drawn from its 450-strong network of professionals, to put forward unified, evidence-based submissions.
The Department of Health sought feedback on the Aboriginal and Torres Strait Islander Genomics Health Guiding Principles and associated Guiding Principles Summary Document, which were developed by the Aboriginal Torres Strait Islander Advisory Group on Health Genomics. Read our submission.
The Australian Government has engaged experts and the public in consultation on the process of legalising mitochondrial donation in Australia. Read our submissions.
Submission on the Primary Health Reform draft recommendations.
The Industry Genomics Network Alliance (InGeNa) engaged HTAnalysts to assist in the development of a white paper on the Health Technology Assessment (HTA) process regarding genetic/genomic testing and treatment. Tiffany Boughtwood participated in the targeted consultation on behalf of Australian Genomics to inform the development of this white paper, which aims to explore key issues…
