When Thursday 14 March 2024, 11am – 12.30pm (AEDT)
Where Online. Link will be emailed to registrants prior to the event.
Registration Registration is free and available here.
The next virtual seminar of the Australian ELSI Genomics Network will be held from 11am to 12:30pm on Thursday 14th March (AEDT) and will explore approaches to engaging the public in genomics.
Guest speakers Professor Dianne Nicol and Professor Naomi Scheinerman will speak to the growing demand to involve everyday people in the process of decision-making.
Prof Dianne Nicol’s presentation will focus on the oft stated need for community consultation regarding human genome editing and the ways in which this may be undertaken. She reflects on her own experience undertaking an Australian citizens’ jury on genome editing, particularly focusing on the extent to which this might reflect broader Australian community views and the ways in which it might help inform policy development.
Prof Naomi Scheinerman’s presentation will discuss how few US institutions provide adequate avenues for including “the public” in moral and policy decision-making on genetic technologies. Existing processes can also be self-selecting and often over-represented by members of industry. Drawing on the examples of CRISPR, newborn screening and prenatal testing, Prof Scheinerman will argue that random selection of lay participants for jury-style deliberation (“deliberative mini-public”) can legitimately supplement regulatory processes.
The seminar will be chaired by ELSI Genomics Network convenor Professor Ainsley Newson, and there will be ample time for audience questions.
How to join
Please register to access the Zoom link. If you cannot attend, please still register as this will ensure you are emailed a link to the recording afterwards. Finally, we invite you to extend this invitation to colleagues, friends and collaborators who have an interest in the ethical, legal and social implications of genomics.