Patient experience surveys

Australian Genomics is enrolling participants into clinical flagship studies to investigate the relative costs and benefits of genomic testing in certain medical conditions, compared to current standard care.

We ask our Flagship participant to complete two surveys as part of their involvement in these clinical flagships:  a baseline survey (around the time the genomic test is ordered), and a follow-up survey (around one month after receiving the genomic test result).

These surveys help us gather important information about the experiences and perspectives of people undergoing genomic testing within our rare disease flagships.

These surveys have been designed and implemented in partnership with The University of Melbourne and the Melbourne Genomics Health Alliance.

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If you are interested in viewing or adapting these survey materials for research use, please contact us to discuss at