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Rare Voices Australia has released its policy platform focused on a comprehensive rare disease framework for Australia

Home All news & events News Rare Voices Australia has released its policy…

Rare Voices Australia has released its newly-developed policy platform, setting out recommendations to government to improve the lives of Australians living with a rare disease.

The National Rare Disease Framework, advocates for:

  • A system that is equitable, accessible, consistent, transparent, timely and person-centred;
  • Collaborative action that includes input from patients, healthcare, government, research and industry;
  • An opportunity for all Australian governments to provide bi-partisan support and work in partnership towards a national coordinated and collaborative approach;
  • Effective rare disease policy to transform patients’ lives.

See more about Rare Voices Australia (RVA) on their website.