Collaboration with the community

Our community partners provide guidance on the development of our patient surveys, digital health and data management strategy, and ethical, legal and social analyses of genomic medicine.

These groups are currently involved in the development of our online participant portal and genomics in the community initiatives.

Genetic Alliance Australia

Syndromes Without A Name Australia (SWAN)


FH Australasia Network

Ovarian Cancer Australia

Myeloma Foundation

Lung Foundation Australia

Leukaemia Foundation

Kidney Health Australia

Genetic Support Network of Victoria

Genetic and Rare Disease Network

Cystic Fibrosis Community Care Australia


Breast Cancer Network Australia

Australasian Gastro-Intestinal Trials Group

Rare Voices Australia

Rare Cancers Australia

Mito Foundation